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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: June 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for June 2026.

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Bi-Allelic NOTCH3 Variants May Cause Early-Onset Vascular Leukoencephalopathy and More: RDCRN Research Roundup

May 3 2022

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Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup

April 26 2022

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RDCRN Research Roundup: April 2022

April 4 2022

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Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

RDCRN Research Roundup: March 2022

March 2 2022

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RDCRN Research Roundup: February 2022

February 3 2022

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RDCRN Research Roundup: December 2021

December 9 2021

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Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network

RDCRN Research Roundup: November 2021

November 1 2021

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The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDI). GLIA-CTN is funded under grant number U54NS115052 as a collaboration between NCATS, the National Institute of Neurological Disorders and Stroke (NINDS), and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the GLIA-CTN administrative coordinating center at Children’s Hospital of Philadelphia and does not necessarily represent the official views of the NIH.

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