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Meet Our Leadership & Administration Teams

The GLIA-CTN is led by multiple investigators with decades of clinical research expertise and extensive leadership experience.

Executive Committee

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A photo of Adeline Vanderver.

Adeline L. Vanderver, MD

Children's Hospital of Philadelphia
Philadelphia, PA
Attending Physician
Program Director of the Leukodystrophy Center of Excellence

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A photo of Florian Eichler.

Florian Eichler, MD

Massachusetts General Hospital
Boston, MA
Director of the Leukodystrophy Service and the Center for Rare Neurological Diseases

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A photo of S. Ali Fatemi.

S. Ali Fatemi, MD, MBA

Kennedy Krieger Institute
Baltimore, MD
Chief Medical Officer

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A photo of Joshua Bonkowsky.

Clinical Liaison

Joshua L. Bonkowsky, MD, PhD

University of Utah Health
Salt Lake City, UT
Division Chief of Pediatric Neurology

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A photo of Omar Sherbini.

Program Manager

Omar S. Sherbini, MPH

Children’s Hospital of Philadelphia
Philadelphia, PA
Program Manager for GLIA-CTN

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A photo of Erica Barnes.

Advocacy Committee

Erica Barnes, MHA

Co-Founder, Chloe’s Fight Rare Disease Foundation
Co-Chair, GLIA-CTN Advocacy Committee

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A photo of Kristie DeMarco.

Kristie DeMarco, BS

President and Founder, Global DARE Foundation
Co-Chair, GLIA-CTN Advocacy Committee

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A photo of Richard Aplenc.

Data Integration Core

Richard Aplenc, MD, PhD, MSCE

Children’s Hospital of Philadelphia
Philadelphia, PA
Associate Professor of Pediatrics

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A photo of Alex Felmeister.

Alex Felmeister, PhD

Children’s Hospital of Philadelphia
Department of Biomedical and Health Informatics (DBHi)
Philadelphia, PA
Data Integration Supervisor

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A photo of Robert Grundmeier.

Robert Grundmeier, MD

Children's Hospital of Philadelphia
Center for Pediatric Clinical Effectiveness (CPCE)
Philadelphia, PA
Core Faculty Member

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Abbas-Jawad

Abbas F. Jawad, PhD, MSC

Children’s Hospital of Philadelphia
Philadelphia, PA
Director of Biostatistics Core in the Center for Human Phenomic Science (CHPS)

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A photo of Justine Shults.

Justine Shults, PhD, MS

Children’s Hospital of Philadelphia
Philadelphia, PA
Faculty director of the Biostatistics and Data Management Core (BDMC)

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