A consortium of scientists, industry stakeholders, and patient advocacy leaders working together to promote advances in the diagnosis and treatment of leukodystrophies.
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Join one of our research studies
Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by rare diseases.
Find a studyRare Research Report: July 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
Rare Research Report: June 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
Rare Research Report: May 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)