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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: June 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for June 2026.

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The New England Journal of Medicine Editors Speak on Striving for Diversity in Research Studies

October 7 2021

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Image courtesy of The New England Journal of Medicine

Researchers Provide Updated Guidance on the Reporting of Race and Ethnicity in Medical and Science Journals

August 17 2021

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Image courtesy of the JAMA Network

A Rare Disease Day Update: RDCRN Survey on Impacts of COVID-19

July 23 2021

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Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article

May 4 2021

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RDCRN Announces New 2021 Network Steering Committee Leadership

February 11 2021

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Stories of Patient Engagement in Rare Diseases Research

June 2 2020

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Q&A with Petra Kaufmann, M.D., M.Sc., Director Office of Rare Diseases Research (ORDR)

January 6 2016

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The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDI). GLIA-CTN is funded under grant number U54NS115052 as a collaboration between NCATS, the National Institute of Neurological Disorders and Stroke (NINDS), and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the GLIA-CTN administrative coordinating center at Children’s Hospital of Philadelphia and does not necessarily represent the official views of the NIH.

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