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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: June 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for June 2026.

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Rare Research Report: July 2025

July 23 2025

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Join RDCRN at Rare Disease Day at NIH on February 28

February 21 2023

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Rare Disease Day at NIH. February 28, 2023. #RDDNIH.

Rare Research Report: January 2023

January 20 2023

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Rare Research Report: September 2022

September 7 2022

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RDCRN Research Roundup: July 2022

July 6 2022

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RDCRN Research Roundup: June 2022

June 1 2022

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Predicting Drugs and Chemicals that May Induce Porphyric Attacks in Patients with Acute Hepatic Porphyrias and More: RDCRN Research Roundup

May 16 2022

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Occupational Lead Exposure is Associated with Shorter Survival in ALS and More: RDCRN Research Roundup

May 9 2022

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The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDI). GLIA-CTN is funded under grant number U54NS115052 as a collaboration between NCATS, the National Institute of Neurological Disorders and Stroke (NINDS), and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the GLIA-CTN administrative coordinating center at Children’s Hospital of Philadelphia and does not necessarily represent the official views of the NIH.

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