Meet Our Leadership & Administration Teams
The GLIA-CTN is led by multiple investigators with decades of clinical research expertise and extensive leadership experience.
Executive Committee
Adeline L. Vanderver, MD
Children's Hospital of Philadelphia
Philadelphia, PA
Attending Physician
Program Director of the Leukodystrophy Center of Excellence
Florian Eichler, MD
Massachusetts General Hospital
Boston, MA
Director of the Leukodystrophy Service and the Center for Rare Neurological Diseases
S. Ali Fatemi, MD, MBA
Kennedy Krieger Institute
Baltimore, MD
Chief Medical Officer
Clinical Liaison
Joshua L. Bonkowsky, MD, PhD
University of Utah Health
Salt Lake City, UT
Division Chief of Pediatric Neurology
Program Manager
Omar S. Sherbini, MPH
Children’s Hospital of Philadelphia
Philadelphia, PA
Program Manager for GLIA-CTN
Advocacy Committee
Erica Barnes, MHA
Co-Founder, Chloe’s Fight Rare Disease Foundation
Co-Chair, GLIA-CTN Advocacy Committee
Kristie DeMarco, BS
President and Founder, Global DARE Foundation
Co-Chair, GLIA-CTN Advocacy Committee
Data Integration Core
Richard Aplenc, MD, PhD, MSCE
Children’s Hospital of Philadelphia
Philadelphia, PA
Associate Professor of Pediatrics
Alex Felmeister, PhD
Children’s Hospital of Philadelphia
Department of Biomedical and Health Informatics (DBHi)
Philadelphia, PA
Data Integration Supervisor
Robert Grundmeier, MD
Children's Hospital of Philadelphia
Center for Pediatric Clinical Effectiveness (CPCE)
Philadelphia, PA
Core Faculty Member
Abbas F. Jawad, PhD, MSC
Children’s Hospital of Philadelphia
Philadelphia, PA
Director of Biostatistics Core in the Center for Human Phenomic Science (CHPS)
Justine Shults, PhD, MS
Children’s Hospital of Philadelphia
Philadelphia, PA
Faculty director of the Biostatistics and Data Management Core (BDMC)