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Rare Research Report: September 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for September 2025.

Rare Disease Research Challenges, Opportunities Due to COVID-19 Featured in New Article

May 4 2021

RDCRN Announces New 2021 Network Steering Committee Leadership

February 11 2021

Headshots of Jennifer Puck, MD, Andrea Gropman, MD, and Marc Rothenberg, MD, PhD

Stories of Patient Engagement in Rare Diseases Research

June 2 2020

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

Central IRB Impact

June 1 2017

RDCRN Investigators and Patient Advocacy Groups – A Partnership

June 4 2016

Q&A with Petra Kaufmann, M.D., M.Sc., Director Office of Rare Diseases Research (ORDR)

January 6 2016

Q&A with Petra Kaufmann, MD, MSc, Director Office of Rare Diseases Research (ORDR)

January 6 2016