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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: June 2026

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for June 2026.

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Rare Research Report: May 2026

May 14 2026

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Rare Research Report: March 2026

March 23 2026

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Rare Research Report: February 2026

February 23 2026

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Join the RDCRN for Rare Disease Day at NIH on February 27, 2026

February 16 2026

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Rare Disease Day at NIH. February 27, 2026. #RDDNIH. ncats.nih.gov/rdd

Rare Research Report: November 2025

November 25 2025

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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

October 29 2025

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Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Rare Research Report: October 2025

October 28 2025

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Rare Research Report: September 2025

September 22 2025

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The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDI). GLIA-CTN is funded under grant number U54NS115052 as a collaboration between NCATS, the National Institute of Neurological Disorders and Stroke (NINDS), and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the GLIA-CTN administrative coordinating center at Children’s Hospital of Philadelphia and does not necessarily represent the official views of the NIH.

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